A person with Alzheimer’s disease is most often cared for by a spouse or family member. As Alzheimer’s disease progresses, the patient needs more and more care — all day, every day. This can be very stressful for the caretakers. Many caretakers can experience mental and physical health issues, a strained family life, problems at work, and difficulty managing finances.
It is important for caretakers to take time for themselves — without feeling guilty. You are not a bad person if you ask for help, or need a break. Remember, you aren’t going to be much help to the patient if you are sick, stressed, or depressed yourself!
A person suffering from memory loss can become combative or belligerent; keep in mind that though they may lash out at you, they are not necessarily aware of what they are doing. It may seem like you are doing a miserable, thankless job as caretaker… it is not easy. You probably never imagined you would be doing it. It can all add up to make you feel miserable.
Remember one very important fact: you are not alone! Across the country and around the world, people are dealing with Alzheimer’s disease. You can find support groups, research centers, information about clinical trials, and more from the following organizations:
- Alzheimer’s Disease Education and Referral (ADEAR) Center. This is a service of the National Institute of Health that offers information and education about everything from diagnosis and treatment to long-term care and cutting edge research. The ADEAR Center staff can refer you to local and national resources.
- The Alzheimer’s Association. This is a non-profit organization that supports families and caregivers. You’ll find chapters across the country that can help you find local resources and services. The Alzheimer’s Association also sponsors support groups and educational programs.
- Eldercare is a service of the Administration on Aging and is funded by the federal government. Eldercare can help you find respite care and other home and community services offered by your state.