Thoughts on Raising a Child with Special Medical Needs
It was 14 years ago on June 14, 1994 when we learned that our son was born with something wrong. We had no idea what that something was until the doctors ran some tests and found that he had Velocardiofacial Syndrome (also known as Shprintzen Syndrome). He couldn’t keep his formula down, and he was not gaining weight. Doctors had to insert a feeding tube through his nostrils (NG tube) so he could be fed. Later the doctors had to surgically insert a tube into his stomach (G tube). My wife and I are glad we did not know what … Continue reading