I’ll never forget the doctor’s visit where I sat across from my son’s pediatrician, describing his congenital cataract. I was very concerned about what it might mean. I had done a lot of research, and knew the possibilities. As I ran one scenario past the doctor, she gave me a blank look. She had absolutely no idea what I was talking about. “Have you heard of that condition?” I asked. Somewhat reluctantly, she admitted she never had. As I mentioned more concerns, she nervously turned her back and got out a notepad. “What were those terms again?” she asked. It … Continue reading →